My name is Hannah, and on the 21st August I will be cycling 107 miles around Anglesey in North Wales to raise money for Genesis Research Trust.

I was diagnosed with Polycystic Ovary Syndrome (PCOS) at an early age and told I had a poor prognosis of having children. Throughout the years, I received little to no help or advice on my condition, mainly due to a lack of knowledge and research.

PCOS has greatly affected my life in many ways; irregular periods, thinning hair, weight problems, chronic fatigue and pain. In later life I run the risk of developing diabetes, heart disease, stroke, depression and sleep apnea… oh the joys of hormones!!

This is why supporting Genesis Research Trust to carry on with their continued research is so important as well as raising awareness and support for people with this condition and other similar conditions affecting so many women… The future doesn’t have to look so scary.

Currently, the main symptom of PCOS affecting my life is infertility.

In 2013, my husband and I embarked on the journey to become parents but sadly this decision was not going to lead us running to the bedroom, instead our journey was to the consultants room to embark on a lengthy process of invasive procedures, countless medications, injections and hormonal mood swings… talk about killing the moment from the get go.

After six months on Chlomid, followed by my first three cycles of IVF, I finally got my much awaited positive result. After 2 years, this felt like a miracle! However, it was a short lived joy as I sadly miscarried both embryos. The heartache and grief was unbearable, I’d had our whole lives mapped out in my mind already, down to their bikes and all the great rides they’d be a part of with us.

My consultant then recommended a mock IVF cycle followed by a biopsy to test for high natural killer (NK) cells… oh joys, more painful invasive and expensive tests as well as the IVF meds but we felt it was well worth going ahead with the biopsy, and it was as the biopsy did reveal I had the raised NK cells. So in December 2015, we underwent our next IVF cycle, which was also our last 2 remaining frozen embryos, but armed with the new results and intralipid infusion meds we were feeling nervous but incredibly hopeful and positive.

On the 21st January 2016, we again got the much anticipated positive pregnancy result, this was the one! Again my excitement had me daydreaming of all the things our life would now have and the adventures we would go on. Sadly, the happiness was again short lived as soon after I again miscarried both embryos. Miscarriage is so lonely and the feeling of being a failure as well as so many more feelings is heartbreaking to say the least. I have the unwavering support off my amazing husband and our families.

Miscarriage is an uncomfortable taboo subject that we need to raise awareness and support for, 1 in 4 women that go through this heartache and it is thanks to the dedicated and vital research carried out by The Genesis Research Trust to improve and prevent as well as the diagnosis and treatment of a range of devastating conditions which cause recurrent miscarriage, infertility, PCOS and other genetic diseases.

My story is not over and I go forward with hope, courage and positivity that one day they will find a way of alleviating if not curing PCOS and also hopeful that my dream of becoming a mummy will one day happen.

Thank you Genesis Research Trust for all you do, I am honoured to be raising money and awareness for such a worthwhile charity.

This is the longest I have ever cycled… thankfully, I won’t be doing it on the tandem! Any donations are gratefully received.

www.justgiving.com/fundraising/HANNAH-MORGAN0182

Hannah x

 

If you would like to share your story email us at stories@genesisresearchtrust.com 

One Comment

  1. Jenna

    Oh sweetheart I feel for you. I’ve also had miscarriages and it’s taken me 6 years to get diagnosed as insulin resistant because of the pcos. I knew I was and had all the symptoms you’re so right there is so little research and support. You’re doing an amazing thing! I will share your link and will try to donate if i can xxx

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